Tag Archive | neuroblastoma

Insight of a Childhood Cancer Survivor

Grant with mom Jennifer

Grant with his mom, Jennifer

This morning NPR shared a story of a 12 year old cancer survivor and gave a touching glimpse into the perspective of how cancer affects children.

When he was 16 months old, Grant was diagnosed with neuroblastoma, a malignant (cancerous) tumor that develops from nerve tissue. Neuroblastoma is most commonly diagnosed in children before the age of five and it occurs in approximately 1 out of 100,000. It can develop in many areas of the body and spread to the bones, bone marrow, liver, lymph nodes, skin, and around the eyes. Surgery, chemotherapy, and radiation are all forms of treatment for neuroblastoma. High-dose chemotherapy followed by autologous stem cell transplantation may be used to treat children with high-risk neuroblastoma .

Click here to hear or read Grant’s story.

You can read more stories about children dealing with cancer on Lifeline Project. Journey, also battling neuroblastoma, Juwuan, currently being treated for chronic myeloid leukemia, and Lily, who fought acute myelogenous leukemia, are just a few of the many children faced with life threatening illnesses.

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Lifeline Project Profiles: Rick, Journey, and Isioma

Meet Rick, Journey, and Isioma. They are three Lifeline Project participants who need help coping with transplant-related expenses.

Lifeline Participant: Rick

Rick

Rick

Rick, a well-regarded horse trainer and instructor, was diagnosed with cancer in 1997. He was faced with the devastating diagnosis again in 2007 and 2009. In order to fight chronic lymphocytic leukemia and small lymphocytic lymphoma (CLL-SLL), Rick underwent additional chemotherapy and a stem cell transplant. Until his immune system rebuilds itself, Rick will not be able to work or be near his beloved horses, leaving him in need of financial assistance for medical and living expenses.

Journey

Lifeline Project Participant: Journey

Journey

Journey, an outgoing and happy six-year-old girl, was diagnosed with neuroblastoma in 2009. Journey and her family needed to relocate in order to be closer to the treatment center. Throughout her chemotherapy and bone marrow transplant, she continued to keep a smile on her face and looked forward to spending time with her little brother and sister. To help Journey and her family focus on her recovery, they are requesting assistance with treatment and relocation expenses.

Lifeline Participant: Isioma

Isioma

Isioma

Last year Isioma was diagnosed with multiple myeloma. Treatments left him physically unable to work in his family’s food business and as a result they lost the business and their source of income. Isioma is currently recovering from the bone marrow transplant he received in April. He is in need of funding to cover the cost of his post transplant care.

To help these or any of the Lifeline Project participants, click here.

Types of Conditions Treated With Bone Marrow/Stem Cell Transplantation

(Please note: This is intended to provide an overview, NOT a comprehensive list of diseases treated by BMT/SCT.)

Bone marrow/stem cell transplantation (BMT/SCT) continues to be investigated as a treatment for a number of diseases, and its therapeutic uses are likely to increase. One of its earliest uses was treating leukemia and lymphoma, cancers that affect white blood cells. Today, BMT/SCT is considered by many experts to be standard therapy for these cancers, as well as for neuroblastoma (a type of brain cancer that occurs most frequently in children) and multiple myeloma (a cancer of the bone marrow), and other noncancerous diseases, including anemia and sickle cell disease. BMT/SCT is also being studied for breast, lung and ovarian cancer; germ cell tumors; and numerous other less common cancers in children and adults. In addition, BMT/SCT may be used to effectively treat cancers that have spread from one site to another in the body, cannot be removed surgically, or have failed to respond to other treatments.

Transplantation is also used in a number of noncancerous conditions, including those that affect the blood or immune system. These include severe combined immunodeficiency disease (SCID), sickle-cell disease, various types of anemia, such as aplastic anemia and Fanconi’s anemia, and autoimmune diseases.

Click here to see a longer list of diseases for which bone marrow or stem cell transplants are performed.