Tag Archive | hemophagocytic lymphohistiocytosis

Lifeline Project Profiles: Joshua, Thomas, and Eddie

Meet Joshua, Thomas, and Eddie. They are the latest Lifeline Project participants to be profiled in our ongoing series highlighting the needs of transplant patients.

Joshua

Lifeline Participant Joshua

Joshua

Since he was four months old, Joshua has been fighting a diagnosis of hemophagocytic lymphohistiocytosis (HLH). He received an allogeneic stem cell transplant weeks before his first birthday. In order to treat HLH, Joshua and his single mother had to relocate. If he survives until 2014, he will be considered 100% cured. Until that time, he will have years of intensive treatment. Joshua and his mother need help paying for medical assistance devices, medications, and living expenses.

Lifeline Participant Thomas

Thomas

Thomas

Thomas was first diagnosed with lymphocyte predominant Hodgkin’s disease in 1989. For over twenty years he has undergone chemotherapy and radiation treatments. Unfortunately, in 2008, the cancer progressed to stage four and began taking over major systems in his body. Thomas has needed to undergo more chemotherapy in order to prepare his body for a bone marrow transplant. After dealing with this diagnosis for so many years, he is in need of financial assistance to help cover post-transplant treatment expenses.

Eddie

Lifeline Participant Eddie

Eddie

In May of 2008, Eddie was diagnosed with Hunter syndrome, a rare genetic disorder that is always progressive and life-limiting. Eddie and his mother needed to relocate so that Eddie could have an unrelated cord blood transplant and a second chance at life. Eddie and his family are currently struggling with transplant-related expenses and the many symptoms related to his diagnosis. They are in need of funding to help cover these expenses.

To help these or any of the Lifeline Project participants, click here.

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Inspiration for Today: 1 in 14 million

For anyone who isn’t convinced that one person can make a difference, check out this video about a young girl battling hemophagocytic lymphohistiocytosis (HLH) and the one bone marrow donor in 14 million who was a match for her.

From Tampa’s WFTS ABC Action News

To read more about Hannah’s story, click here.

Lifeline Project Profiles: Nick, Donald, and Alexander

Meet Nick, Donald, and Alexander. They are the latest Lifeline Project participants to be profiled in our ongoing series highlighting the needs of transplant patients.

Lifeline Participant Nick

Nick

Nick

Despite the numerous heath problems he’s faced over the years, Nick’s family describes him as having a “zest for life.” Most recently he was diagnosed with myelodysplastic syndromes (MDS), a group of diseases that affect the bone marrow and blood, and can develop into a severe type of leukemia. After a lengthy donor search, Nick recently underwent a bone marrow transplant. The transplant should bring about long-term remission, but he will need help affording the post-transplant expenses.

Donald

Lifeline Participant Donald

Donald

Donnie, a devoted husband and father of three, was diagnosed with chronic myelogenous leukemia (CML) in 2009. Since that time he has been required to take multiple medications, undergo weekly shots in his stomach, and weekly physician appointments. Donnie’s upcoming bone marrow transplant will require that he and his wife relocate, which will mean giving up both their incomes. They are in need of financial support for medical and living expenses until they can return to work.

Lifeline Participant Alexander

Alexander

Alexander

At just six weeks old, Alex was diagnosed with hemophagocytic lymphohistiocytosis (HLH), an extremely rare disease of the blood and bone marrow that is always fatal if not identified early and treated aggressively. In order to survive, Alex underwent seventeen weeks of chemotherapy and a bone marrow transplant. However, Alex is having serious complications that require continual intensive care. His medical expenses have caused a financial hardship for his family and they need assistance affording his continued medical care.

To help these or any of the Lifeline Project participants, click here.