Tag Archive | Fanconi’s anemia

On the line: Eligibility criteria

The Bone Marrow Foundation was founded with one goal: to improve the lives of bone marrow, stem cell, and cord blood transplant patients and their families. One of the ways the Foundation tries to do this is by helping ease the burden of some of the additional expenses related to transplant, such as housing, transportation, childcare, co-pays, and donor searches. The Foundation does not restrict its financial assistance to a specific disease, type of transplant, or age range, which makes these programs vital resources for many patients who do not meet other organizations’ eligibility criteria.

While advocating on behalf of a young mother in need, one social worker recently wrote:

“Furthermore, since she has fanconi anemia and MDS, most of the cancer organizations that usually offer help are not willing to do so, since these are not considered “cancers,” yet the treatment (chemo and stem cell transplant) is the same.”

The Bone Marrow Foundation relies 100% on private contributions from generous individuals, businesses, and foundations. To learn how you can make a gift to support transplant patients and their families, click here.

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Lifeline Project Profiles: Lee, Sandra, and Rileigh

Meet Lee, Sandra, and Rileigh. They are three Lifeline Project participants who need help coping with bone marrow transplant-related expenses.

Lee

Lifeline Participant: Lee

Lee

Lee, a married father of three, was diagnosed with adult T-cell leukemia/lymphoma (ATLL) in 2010. He has undergone six months of aggressive treatment, which included chemotherapy and a bone marrow transplant. Lee had to give up his weekend construction work and was no longer able to take care of his youngest son during the week. Without his income and the additional expense of childcare, his family needs help affording his medical and donor expenses.

Sandra

Lifeline Participant: Sandra

Sandra

Sandra, a married mother of two, was diagnosed with acute myeloid leukemia (AML) in 2009. She is currently undergoing chemotherapy in order to go back into remission. Once in remission, Sandra can undergo a bone marrow transplant, which will be donated by her daughter. Given the lengthy treatment process, which is far from Sandra’s home, she has not been able to work at her job as a college professor since last year. She and her family need help with travel and donor related expenses.

Rileigh

Lifeline Participant: Rileigh

Rileigh

Rileigh was diagnosed with immunosuppressive aplastic anemia in June 2010. Later, her blood count numbers crashed and it was discovered that she also has Fanconi’s anemia. The only way to treat the aplastic anemia associated with Fanconi’s anemia is with a bone marrow transplant. Rileigh underwent her transplant and her family relocated to be near the transplant center. They are currently maintaining two residences and unable to work, so any donations would be helpful.

To help these or any of the Lifeline Project participants, click here.

Types of Conditions Treated With Bone Marrow/Stem Cell Transplantation

(Please note: This is intended to provide an overview, NOT a comprehensive list of diseases treated by BMT/SCT.)

Bone marrow/stem cell transplantation (BMT/SCT) continues to be investigated as a treatment for a number of diseases, and its therapeutic uses are likely to increase. One of its earliest uses was treating leukemia and lymphoma, cancers that affect white blood cells. Today, BMT/SCT is considered by many experts to be standard therapy for these cancers, as well as for neuroblastoma (a type of brain cancer that occurs most frequently in children) and multiple myeloma (a cancer of the bone marrow), and other noncancerous diseases, including anemia and sickle cell disease. BMT/SCT is also being studied for breast, lung and ovarian cancer; germ cell tumors; and numerous other less common cancers in children and adults. In addition, BMT/SCT may be used to effectively treat cancers that have spread from one site to another in the body, cannot be removed surgically, or have failed to respond to other treatments.

Transplantation is also used in a number of noncancerous conditions, including those that affect the blood or immune system. These include severe combined immunodeficiency disease (SCID), sickle-cell disease, various types of anemia, such as aplastic anemia and Fanconi’s anemia, and autoimmune diseases.

Click here to see a longer list of diseases for which bone marrow or stem cell transplants are performed.