Tag Archive | children

Getting Back to Where He Was

Nile Price fought a difficult battle with sickle cell disease, but he has come through it victorious.

While he suffered the pains and multiple hospitalizations caused by the disease, Nile’s family reached out to the community for assistance. They encouraged potential bone marrow donors to be tested. They held local fundraisers and opened a One-to-One Fund at The Bone Marrow Foundation to help pay for medical expenses, like doctors visits and medications.

Their efforts were successful. Two donors were found, and at the age of 13, Nile underwent an allogeneic bone marrow transplant. Two years later, Nile and his family met the woman whose donation cured his sickle cell disease.

Nile Price

Click the image above to watch a video about Nile and his recovery.

In the years following his transplant, Nile suffered graft versus host disease (GVHD) which has affected his skin and muscles. Fortunately, with the support of his family, Nile is growing stronger. His doctors are reducing his medications and have released him from physical therapy.

Nile is proud of the progress he has made, saying, “I knew I was going to get back to where I was. I just didn’t know how long it would take.”

Read more about Nile and his transplant journey:

Lifeline Project Profiles: Arianna, Hailey, and Jayvin

Meet Arianna, Hailey, and Jayvin. They are the latest Lifeline Project participants to be profiled in our ongoing series highlighting the needs of transplant patients.

Lifeline Participant Arianna

Arianna

Arianna

Arianna is a four year old girl who was diagnosed with Ewing’s sarcoma in December of 2010. She underwent chemotherapy, radiation, and recently had a stem cell transplant. Arianna loves riding her bike, dressing up, and swimming in the summer. She lives with her nine year old sister Bre and their mother, who could use assistance with transportation and caregiver expenses.

Lifeline Participant Hailey

Hailey

Hailey

Hailey was diagnosed with Hurler syndrome when she was just one and a half years old. She received a bone marrow transplant in March of 2011 and has since developed a chronic anemia similar to Evans syndrome when her bone marrow stopped producing red blood cells. She has received rabbit and horse ATG to treat the disorder. Due to the strenuous nature of treatment, Hailey’s mom has not been able to work. Your donation is tremendously appreciated and will be used for transportation, medical, and daily living expenses.

Lifeline Participant Jayvin

Jayvin

Jayvin

At only seven months old, Jayvin was diagnosed with juvenile myelomonocytic leukemia (JMML). This type of leukemia is extremely rare and the only known cure is a stem cell transplant. Jayvin underwent his transplant at eight months old; if he does not relapse he will be considered cured by the year 2013. Until that time he will continue to receive treatment to maintain his health. Jayvin’s immune system is still compromised, so his mother is unable to work while she cares for him during recovery. His family is in need of assistance with their expenses, especially transportation to and from the treatment center.

To help these or any of the Lifeline Project participants, click here.

Lifeline Project Profiles: Jose Juan, Todd, and Ronnie

Meet Jose Juan, Todd, and Ronnie. They are the latest Lifeline Project participants to be profiled in our ongoing series highlighting the needs of transplant patients.

Jose Juan

Lifeline Participant Jose Juan

Jose Juan

High school senior, Jose Juan, is in need of a life saving bone marrow transplant to treat his aplastic anemia. Fortunately, his brother is a match and he is scheduled to undergo the transplant in April. Jose Juan is uninsured, but has been accepted to a transplant center that will help cover his medical costs provided he can cover the necessary outside expenses. Financial assistance is needed for housing, meals, and transportation during his transplant and follow-up treatment.

Lifeline Participant Todd

Todd

Todd

Todd underwent a bone marrow transplant in order to treat his diagnosis of Philadelphia chromosome + acute lymphoblastic leukemia (Ph+ALL). Shortly after his transplant he lost his insurance and is now having financial difficulty paying for medication and co-pays. Todd needs to be able to fund his post-transplant treatment.

Ronnie

Lifeline Participant Ronnie

Ronnie

Ronnie, a 58 year old married father of three, was diagnosed with chronic myelogenous leukemia and Philadelphia chromosome (Ph+CML) in April of 2010. Due to treatment, he and his wife are both currently out of work on medical leave. Ronnie underwent a stem cell transplant this past March and his wife is serving as his caregiver. Ronnie has a lengthy recovery ahead of him and he and his family are in great financial need to cover all of their expenses.

To help these or any of the Lifeline Project participants, click here.