Tag Archive | aplastic anemia

On the line: Up Front Costs

House

Photo: “House” by Tax Credits

Katie has significant expenses, as she will need to re-locate near the transplant center for 3 months. Her rent at home is $800/month. Though she can be reimbursed $1,500/month for lodging at the transplant center from insurance, she needs to come up with the money up front and does not have it….The patient is in desperate need of funding to help pay for her portion of lodging ($1,500 for 3 months = $4,500)

Katie’s doctors decided that an allogeneic transplant was the best course of treatment for her aplastic anemia. In addition to housing, she also listed transportation and co-pays/insurance premiums as her areas of greatest need.

In order to give a more clear idea of the depth of need faced by bone marrow, stem cell, and cord blood transplant patients and their families, we are sharing excerpts from actual applications to The Bone Marrow Foundation’s Patient Aid Program. The names have been changed to maintain confidentially, but the stories are straight from the applications.

To learn how you can make a gift to support the Foundation’s efforts to help transplant patients and their families, click here.

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Lifeline Project Profiles: Jose Juan, Todd, and Ronnie

Meet Jose Juan, Todd, and Ronnie. They are the latest Lifeline Project participants to be profiled in our ongoing series highlighting the needs of transplant patients.

Jose Juan

Lifeline Participant Jose Juan

Jose Juan

High school senior, Jose Juan, is in need of a life saving bone marrow transplant to treat his aplastic anemia. Fortunately, his brother is a match and he is scheduled to undergo the transplant in April. Jose Juan is uninsured, but has been accepted to a transplant center that will help cover his medical costs provided he can cover the necessary outside expenses. Financial assistance is needed for housing, meals, and transportation during his transplant and follow-up treatment.

Lifeline Participant Todd

Todd

Todd

Todd underwent a bone marrow transplant in order to treat his diagnosis of Philadelphia chromosome + acute lymphoblastic leukemia (Ph+ALL). Shortly after his transplant he lost his insurance and is now having financial difficulty paying for medication and co-pays. Todd needs to be able to fund his post-transplant treatment.

Ronnie

Lifeline Participant Ronnie

Ronnie

Ronnie, a 58 year old married father of three, was diagnosed with chronic myelogenous leukemia and Philadelphia chromosome (Ph+CML) in April of 2010. Due to treatment, he and his wife are both currently out of work on medical leave. Ronnie underwent a stem cell transplant this past March and his wife is serving as his caregiver. Ronnie has a lengthy recovery ahead of him and he and his family are in great financial need to cover all of their expenses.

To help these or any of the Lifeline Project participants, click here.

Lifeline Project Profiles: Cynthia, Saige, and Julius

Meet Cynthia, Saige, and Julius. They are the latest Lifeline Project participants to be profiled in our ongoing series highlighting the needs of transplant patients.

Cynthia

Lifeline Participant Cynthia

Cynthia

Thirteen-year-old Cynthia was diagnosed with Philadelphia chromosome and chronic myeloid leukemia (Ph+CML) in November of 2010. She recently underwent a bone marrow transplant and now she and her mother are staying near the hospital for follow-up care. Cynthia is looking forward to going home so she can spend time with her family, including her two younger sisters. She is also looking forward to going back to school. While Cynthia focuses on returning home, her family could use assistance with post-transplant related expenses.

Saige

Lifeline Participant Saige

Saige

Saige, a fourteen year old girl, was diagnosed with severe aplastic anemia. Treatment required a bone marrow transplant, and her family was extremely grateful when Saige’s sister turned out to be a perfect match. She underwent her transplant on her birthday last June. Saige and her mother needed to remain locally near the treatment center, while her father and siblings remained at home. This separation has caused a financial strain on the family and they would benefit from any financial assistance provided.

Julius

Lifeline Participant Julius

Julius

Julius was recently diagnosed with multiple myeloma and is in need of a bone marrow transplant. As he begins the transplant process he has found it financially difficult to afford all of the necessary treatments. Julius is currently an unemployed maintenance worker and is living with his brother while he begins treatment. He needs help affording transportation, living expenses, food, and other costs associated with a bone marrow transplant.

To help these or any of the Lifeline Project participants, click here.