Research Survey for Adult Stem Cell Transplant Patients and their Caregivers

We recently received an email requesting our help in spreading the following about a research survey being conducted by the University of North Carolina:

Are you an adult who has had an allogeneic transplant, or are you the caregiver of someone who has undergone this treatment?

Researchers at the University of North Carolina at Chapel Hill are preparing to develop resources to help adult allogeneic stem cell transplant recipients and their caregivers. Their goal is to make post-transplant recovery easier and less stressful, and to help people get back to normal after transplant. They have developed a brief survey that asks transplant recipients and caregivers to provide feedback on the biggest challenges to having a healthy recovery after hospital discharge. They also want to know what kinds of resources would make recovery easier and less stressful. Your feedback on these issues would help them create those resources.

The survey asks about:

  • The medications and self-care that were most important to you but that you found most difficult to follow after hospital discharge,
  • How well you think you were able to follow recommendations for medications and self-care,
  • Help and information you got, or that you would have liked to get, to help you follow those recommendations, and
  • Other kinds of resources that would have made recovery easier and less stressful.

If you would be willing to provide feedback on these issues, please click on the link below. It will take you to the survey, which will take 10-15 minutes to complete. Your responses will be completely anonymous. If you have any questions, please contact Christine Rini at 919-843-6580 or christine.rini@unc.edu.

Your Anonymous Survey Link: https://unc.qualtrics.com/SE/?SID=SV_bkJOZXVoBx1pVIh

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About The Bone Marrow Foundation

Founded in 1992, The Bone Marrow Foundation is dedicated to improving the quality of life for bone marrow, stem cell, and cord blood transplant patients and their families by providing vital financial assistance, emotional support, and comprehensive educational programs. The Foundation is the only organization of its kind that does not limit assistance to a specific disease, type of transplant or age range.

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